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[personal profile] sabrinamari
1. Book way, way over deadline

2. Lots of new demands at work

3. Michael's been sick for several weeks: sore throat, lethargy, slowed healing, headaches. He's had 2 rounds of blood tests so far---we seem to have eliminated Epstein Barr and several other viruses/conditions as the Big Bad, but there is still no diagnosis. I am holding out for him to talk with his NP while he has a copy of the bloodwork results in his hands; I have little faith in the system as it is currently structured. Continued pestering and self-advocacy is absolutely necessary for any potentially serious condition.

This is stressful for us, although we are handling it well. He has an amazing ability to laugh and snuggle and provoke us all into fits of giggling in the most trying of times! This man is so unbelievably easy to love.

Last night Trent woke up at 3:30 from a bad dream in which monkeys with knives were attacking the funeral home. Michael made Trent laugh with stories about a magic pierogi. "Dream about the magic pierogi," he advised the giggling boy. It was a lovely, useful response.

I think I've been scaring myself and him with all my urging to pursue medical care/testing, since so many of my friends have chronic fatigue, fibro and other serious chronic illnesses. I take them seriously, and I know that as a rule, they are handled badly by our biomedical health care system.

4. I am going to be even less accessible than usual this month, with all this crap.

Date: 2007-08-01 01:22 pm (UTC)
From: [identity profile] elphaba-of-oz.livejournal.com
It sounds like Shades_of_Nyx has found a good doctor. Maybe Michael could go to that doctor?

I'm sorry this is happening. I know it's not fun.

((((((hugs all three of you)))))

Date: 2007-08-01 01:29 pm (UTC)
From: [identity profile] boy-pastiche.livejournal.com
We send our best wishes to you, and loads of empathy.

Date: 2007-08-01 02:03 pm (UTC)
From: [identity profile] rio-luna.livejournal.com
pats and hugs alla round.

Date: 2007-08-01 02:05 pm (UTC)
From: [identity profile] tigira.livejournal.com
*huuugs* It's frustrating to NOT know what's going on. Sometimes I think that's worse than finally having a diagnosis and knowing what to do.

Have you tried Chinese medicine or acupuncture? I know it's odd, but I have a number of friends around here who have had better success with that route. I think I'm lucky in that my medical group is a strong proponent of alternative therapies. (My doctor recommended my acupuncturist!)

I'll miss seeing you, though. :( I understand needing to care for family and responsibilities.

Perhaps this means you need to take a trip up to Boston? If the whole household wants to join you, we have room!

Date: 2007-08-01 02:06 pm (UTC)
From: [identity profile] phillyfyre.livejournal.com
you'll be missed! hope M gets better soon!

Date: 2007-08-01 02:10 pm (UTC)
From: [identity profile] ingridsummers.livejournal.com
I'm sorry you're sweety isn't well. I'm sure they tested for Lymes - but if not the symptoms sound a bit like it.

We are also not going to Geo's weekend. Our finances continue to be difficult. It's a learning experience for us. I'm simply hoping that some day we'll actually have a tenant that pays on-time, in full for more than a few months. Then all the good money skills we're learning now will mean an abundance.

Miss you!

Date: 2007-08-05 01:02 pm (UTC)
From: [identity profile] sabrinamari.livejournal.com
So sorry to hear about this! Being a landlord is very challenging.

Date: 2007-08-01 02:19 pm (UTC)
From: [identity profile] evilbunny.livejournal.com
I'll miss seeing you, though it's totally understandable. Give Michael my best.

Date: 2007-08-01 02:24 pm (UTC)
From: [identity profile] glenmarshall.livejournal.com
Bummer that you won't be there this weekend, but your priorities need to be dealt with. I'll miss you & Michael.

Date: 2007-08-01 02:36 pm (UTC)
From: [identity profile] vgnwtch.livejournal.com
Hurray for lack of Epstein-Barr! Lymes Disease sprang to mind as something else to eliminate.

Also, stress from big life changes and the divorce?

I send lots of love to the family, and Good Get Well Fast Vibes to M.

With my new schedule, I'm free on Friday mornings, so if it's OK, I'd like to call you.

Date: 2007-08-05 01:03 pm (UTC)
From: [identity profile] sabrinamari.livejournal.com
Thanks, hon. Friday ams are good times. Loved talking with you.

Date: 2007-08-01 02:51 pm (UTC)
From: [identity profile] jasminewind.livejournal.com
{{{squeeze}}}

Date: 2007-08-01 02:59 pm (UTC)
From: [identity profile] seedmoon.livejournal.com
Sorry you're not going to be able to get away.

*Huge Hug* to you and Michael as well.

Date: 2007-08-01 03:52 pm (UTC)
From: [identity profile] lindalee.livejournal.com
I'm thinking of you guys...

Let's catch up when we have a chance, OK?

And I second the idea of you (all?) coming to Boston. It would be great to see you.

Date: 2007-08-01 04:23 pm (UTC)
From: [identity profile] shades-of-nyx.livejournal.com
Eek...
All of my support to Michael as he heals.

The only advice I have, healthwise for him, is to treat the symptoms. Sometimes there isn't a diagnosis...

So sad I won't be seeing you this weekend.

Date: 2007-08-01 04:56 pm (UTC)
From: [identity profile] lady-daegonna.livejournal.com
*big hugs for everybody*
I hope things calm down, and I hope Micheal feels better, soon. Your comment about Trent's nightmares reminded me of two things:
1.) I was hoping to make him a dreamcatcher. What colors would he like?
2.) Linda suggested I talk to you about a sleep oil, because of my own nightmares.

Date: 2007-08-05 01:06 pm (UTC)
From: [identity profile] sabrinamari.livejournal.com
Hi love...we are still planning to see you next weekend. trent loves red, and we just redid his room in shades of red.
Hmmm, let's talk about this. I can speak to you about it. Linda gave me a fantastic oil that really helped. It actually stopped my nightmares immediately. She couldn't find the recipe, but I may still have it around. If not, perhaps a new attempt at constructing an anti-nightmare oil is in order.

Love you!

Date: 2007-08-07 03:00 am (UTC)
From: [identity profile] lady-daegonna.livejournal.com
Patrick (amazing man that he is) helped me work out a sort of meditation that has helped immensely. I'll admit, I'm not perfect at it, I have good nights and bad. The oil still seems like a good idea, though.

I'll head out for dream catcher supplies after I get back. I have to make one for Adrienne, too.

Date: 2007-08-01 05:03 pm (UTC)
From: [identity profile] eleithyia.livejournal.com
So sad I won't see you this weekend, but priorities are priorities. Send M hugs for me...and don't forget to take care of yourself, too!

Date: 2007-08-01 06:40 pm (UTC)
From: [identity profile] justusgirlz.livejournal.com
Hugs to the family - I hope this gets figured out and treated ASAP so Michael can have his health back and no one has to worry anymore.

Don't forget to take care of yourself, too! Don't stress so much you take yourself down - then Michael will have to worry about you, and poor Trent will be worrying about you both and dreaming of other evil Oz characters doing scary things.

Thinking happy, healthy thoughts and sending them your way . . .

Date: 2007-08-02 12:48 am (UTC)
From: [identity profile] sligoe.livejournal.com
Hugs to your honey and to you. Let me know if there is anything I can do to help.

I won't call this evening---I finally have a contract on my house, and I was busily signing papers this afternoon! :) Maybe we could get in touch another day this week? No rush---I just want to make sure all is ready when you arrive.

More hugs.

Date: 2007-08-02 01:09 am (UTC)
From: [identity profile] castalusoria.livejournal.com
(congrats on the contract! big changes since I saw you on Sunday! Yay!)

Date: 2007-08-02 01:04 am (UTC)
From: [identity profile] castalusoria.livejournal.com
Perfect timing-- was apathetic about fixing something to eat tonight until I read your post-- and found pierogi in the freezer! You've saved me from a night of scavenging!

I am thinking of you and your guys, and sending calming and healing thoughts to each of you.

Date: 2007-08-02 01:31 am (UTC)
maewyn: a middle-aged obi-wan holds his goatee, looking worried and pensive (pillows & sleep)
From: [personal profile] maewyn
Aww, I was looking forward to seeing you again! Stuff does have to be taken care of, though. My best and hugs to everyone.

Sounds like Lyme Disease

Date: 2007-08-02 06:23 pm (UTC)
From: [identity profile] doverider.livejournal.com
just an idea.
Much Love
Good health to you & yours
Dove

*hugs*

Date: 2007-08-03 05:13 pm (UTC)
From: [identity profile] eoma-p.livejournal.com
Hugs to both of you. Take care of yourselves and each other. You're in our thoughts and prayers.
--Peggy

Re: *hugs*

Date: 2007-08-05 01:11 pm (UTC)
From: [identity profile] sabrinamari.livejournal.com
Thanks, honey---can't wait to see you next weekend. Yay! You are on LJ!

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